Okay, so a little introduction about myself.
My name is Lily (not my real name) and I initially started this blog as a way to vent away my frustrations at having Fibromyalgia and the other auto-immune illnesses that have arisen as a result of it…also because Farm Heroes Super Saga wasn’t downloading and I was bored.
I was first diagnosed with Fibromyalgia back in 2007. Before that, I was fit, healthy and regularly attended weight training, yoga, Tai-Chi and kick-boxing. I also had an active social life and loved nothing more than a stroll through the park, attending music festivals, going to cinemas and ogling relics of the past at various museums, and all with my little Demon Seed by my side. Then I caught swine flu and suddenly my life as I once knew it, was taken away.
The after effects of the flu left me with a chest infection and then gastroenteritis and after a few weeks, I begun to suffer from violent body tremors which left me unable to walk or talk. I was sore and stiff and when I could eventually walk again, every step that I took, resulted in pain and tiredness. Eventually, a rather unsympathetic consultant diagnosed me with Fibromyalgia. No details were given nor were there any explanations. I was simply given a leaflet and told to go and look it up, so I did. I now know more about the condition then the so called experts.
The body tremors which contracted the muscles in my back, have never relaxed causing difficulty in walking. This affected my hips and then my legs and now I use a walking stick to get around. As well as the numerous symptoms of fibro, I now also suffer from ME, Osteoarthritis and Hypothyroidism and recently, was diagnosed with arthritis of the eyes. Yep, that is actually a thing.
Most days I am bed bound and my Demon Seed has now become my carer, even though he has to also contend with having high functioning autism. The guilt I feel about this is enormous. No child should ever have to take care of their parent. EVER. I still haven’t mourned the life that I once had and though I often feel like giving up, I still hold a little hope that one day, a cure will be found.
Wow, that was all a bit depressing. Bet you wished you hadn’t bothered to stop and have a read. 🙂